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DIPG, Elyse Defying the odds, nearly 4 years and going strong.

Article by Casey Johnson, Mother to Elyse, a follow up to this earlier post from 2018Hi my name is Casey. I’m a wife and mother to two children, Blake 9yrs and Elyse 6yrs.We had a perfect life that was soon to be shattered. I’ll tell you a bit about our story.The past 3 years 8 months have proven to be some of the hardest yet greatest and most rewarding moments of my life.Elyse, my...
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DIPG, Elyse Defying the odds.

Article by Casey Johnson, Mother to Elyse.Our daughter Elyse who is now four years old, was diagnosed with a rare and aggressive brain tumour called diffuse intrinsic pontine glioma (DIPG) on April 9th 2016 just over 2 years old.This tumor has a very low survival rate with less than 1% of its victims beating the odds. It predominantly affects children and most pass away within 3-9 mont...
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The Costs of Cannabis – Food vs Pharmaceutical grade.

One of the key barriers to improved access to Cannabis Based Products in the current framework is cost.  Sativex, available on-label for MS, has less than 12 people using it in NZ for that purpose, out of a patient population of 3000+ where trials demonstrate that a little over 40% of medium to severe patients gain sustained clinical benefit, there are hundreds of patients with this one condit...
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