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Sativex

DIPG, Elyse Defying the odds, nearly 4 years and going strong.

Article by Casey Johnson, Mother to Elyse, a follow up to this earlier post from 2018Hi my name is Casey. I’m a wife and mother to two children, Blake 9yrs and Elyse 6yrs.We had a perfect life that was soon to be shattered. I’ll tell you a bit about our story.The past 3 years 8 months have proven to be some of the hardest yet greatest and most rewarding moments of my life.Elyse, my...
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The Costs of Cannabis – Food vs Pharmaceutical grade.

One of the key barriers to improved access to Cannabis Based Products in the current framework is cost.  Sativex, available on-label for MS, has less than 12 people using it in NZ for that purpose, out of a patient population of 3000+ where trials demonstrate that a little over 40% of medium to severe patients gain sustained clinical benefit, there are hundreds of patients with this one condit...
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NZ Herald: Mum hopes Cannabis Poll helps.

Grace Yeats' mother says those around them can see how a cannabis-based treatment has helped her daughter.
Carterton mother Tracy Yeats hopes the Government will take notice of a survey which shows overwhelming support for the legalisation and decriminalisation of cannabis for medicinal use.Mrs Yeats' daughter Grace, 14, has shown significant improvements in her health since she began taking Sativex, a cannabis-based spray, eight months ago.She has a rare condition, acute disseminated encep...
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#MC410 Sativex for Paige

Paige was the first child in New Zealand to legally access a Cannabis Based product, in this case Sativex.  There was much media coverage at the time with the family featuring on Sunday, Newspapers etc.  She was only 11 years old when she started on Sativex, and she has been on it ever since.Paige is now 13 years old,  her initial diagnosis with Dravets syndrome was when she was just two y...
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Newstalk ZB: Pharmac turns down funding cover for Sativex

Pharmac is being left to make the final call on how a young woman suffering life threatening seizures can access medication.Sushila Butt has petitioned Parliament over treatment for her 21 year old daughter and her ability to access the cannabinoid medication known as Sativex.The Butt family can't afford the medication and has applied to Pharmac for funding to cover its cost - a move s...
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NewsHub: Multiple sclerosis sufferer gifted $1000 worth of medicinal cannabis

A multiple sclerosis sufferer has been gifted an extra month of medicinal cannabis treatment thanks to th e generosity of a young couple from central Otago. Peter and Ashleigh Brown spent more than a year battling for access to Sativex for their son, Riley, who was born with the rare congenital disorder Zellweger syndrome. Tragically, Riley died in April on the very day he was supposed to beg...
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#MC410 Sativex for Warren Edney

Warren was diagnosed with Multiple Sclerosis (MS) in May 2013. Warren was just 41 years old at the time. MS causes damage to nerves in the body. Nerves in the brain and spine send messages to parts of the body. These messages help with bodily functions e.g.  Flexing and straightening muscles; for bladder function; for the mechanics of speech etc.“I knew what MS was because my mother had MS. Th...
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One News: ‘How much pain do I need to be in?’ MS sufferer pleads for funding of medical cannabis

Sickness beneficiary Warren Edney, who suffers immensely from a rapidly progressing form of MS, on his need for Medical Cannabis, to support Warren, and others like him, please consider donating to him on our give a little page. 
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Guidelines for applying for medicinal cannabis barely touched following review

Terminally ill Helen Kelly says the Government has made her a "criminal" after a review of medicinal cannabis guidelines ended with little change.More than a year ago the former Council of Trade Unions boss was diagnosed with terminal lung cancer and after trying a variety of different medications she resorted to cannabis for pain relief.Kelly continues to illegally source her own drugs af...
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