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DIPG

DIPG, Elyse Defying the odds, nearly 4 years and going strong.

Article by Casey Johnson, Mother to Elyse, a follow up to this earlier post from 2018Hi my name is Casey. I’m a wife and mother to two children, Blake 9yrs and Elyse 6yrs.We had a perfect life that was soon to be shattered. I’ll tell you a bit about our story.The past 3 years 8 months have proven to be some of the hardest yet greatest and most rewarding moments of my life.Elyse, my...
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DIPG, Elyse Defying the odds.

Article by Casey Johnson, Mother to Elyse.Our daughter Elyse who is now four years old, was diagnosed with a rare and aggressive brain tumour called diffuse intrinsic pontine glioma (DIPG) on April 9th 2016 just over 2 years old.This tumor has a very low survival rate with less than 1% of its victims beating the odds. It predominantly affects children and most pass away within 3-9 mont...
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Grandparents call in lawyers to get terminally ill child medical cannabis

The grandparents of a five-year-old with terminal brain cancer have called in a lawyer after doctors refused to consider medical cannabis to treat the child.In August last year the child was given nine to 12 months to live after being diagnosed with an inoperable tumour on her spinal cord.Photo: AFPHer father also wants her to receive medical cannabis treatment, despite protests ...
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Our Story – DIPG Brain Tumor

DIPG Brain tumor
 My beautiful one and only Granddaughter was born on the first day of spring 2010 and I was thrilled, scared, overjoyed, nervous, and oh so very much in love from the first time I set eyes on her. My daughter just 19 years old, back at home with me after having left her partner. It is now 2015 and my wee granddaughter is 5 years old and has brain cancer.This year has been a total trai...
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